Celine Dion is battling stiff person syndrome, an incurable and progressive disease which causes stiff muscles around the body and greater noise and touch sensitivity
Celine Dion celebrated her 55th birthday today (March 30) surrounded by her family. But the diva has been rather quiet recently since confirming that she’s been battling stiff person syndrome – an incurable, progressive neurological disease affecting the muscles.
The My Heart Will Go On songstress confirmed her diagnosis in December 2022 in a tearful Instagram video, explaining to fans that she was suffering severe muscle spasms that left her unable to sing. The rate of diagnosis for the rare condition is just one in every million people.
She explained: “I’m sorry it’s taken me so long to reach out to you. I miss you all so much, and I can’t wait to be on stage talking to you in person. As you know, I’ve always been an open book, and I wasn’t ready to say anything before, but I’m ready now.
“I’ve been dealing with problems with my health for a long time,” she confessed. “It’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through.
“Recently I’ve been diagnosed with a very rare neurological disorder called stiff person syndrome which affects something like one in a million people.
“While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms that I’ve been having. Unfortunately, the spasms affect every aspect of my daily life – sometimes causing difficulties when I walk, and not allowing me to use my vocal cords to sing the way I’m used to. “It hurts me to tell you today that this means I won’t be ready to restart my tour in Europe in February.
“I have a great team of doctors working alongside me to help me get better, and my precious children who are supporting me and giving me hope.